WHAT IS MYOTONIC DYSTROPHY?
Myotonic dystrophy (DM) is a rare genetic disorder that can cause problems with many systems in the body. The various forms of myotonic dystrophy are caused by changes at different sites in the DNA of an individual. DM1, affects an estimated 1 in 8,000 people worldwide, or nearly 40,000 individuals in the US alone.
MAKE A DIFFERENCE
Diary of a Promise
2016-17 BENEFACTORS
Thank you to our 2016-17 benefactors who have pledged or contributed $650 or more to fund Myotonic Dystrophy research and support.
Paul and Jami Bueker
Brian and Jennifer Davey
David and Elizabeth Conte
Barbara Ellis
Claire and Judith Darlington
Eli and Julie Freidus
Blaine and Lisa Hess
Renee Kopkowski
Lynda Lewis
Gene and Lisa Robbins
Publix Supermarkets
Valerion Therapeutics
This is the video that was shown at the 2014 Promise to Kate event. It is a chronological telling of her progress in her first 41/2 years of life.
Kate's story
This is how Kate Conte spent the first 4 1/2 years of her life. The time to find a cure is now.
